Jackie MangiolinoJackie Mangiolino2017-10-21There are some very exciting things in the future for everydaymother and I feel such a sense of peace about it. This book wasn’t something I EVER imagined being a part of our lives, and yet it now seems like it’s always been what I was meant to do. But then again, everything about Richie has been a lesson in letting go, accepting, trusting, and intuition. This little child has changed our lives in such monumental ways that sometimes I can’t help but sit back in awe. 📷 kaylatiffanyphotohttps://scontent.cdninstagram.com/t51.2885-15/e35/p640x640/22638993_483222412060610_7543043284331921408_n.jpg2017-10-21
Zion & ElijahZion & Elijah2017-10-21Elijah has been through a lot in the seven months he has been alive. This scar is his battle scar that he'll have for the rest of his life just to show him how tough he truly is. NEC syndrome is no joke it can be deadly and it's a really serious disease. Some babies come out of it, some babies pass away, some babies have to get bowel removed and some just have to get ostomys and then get reconnected again. Some have to get G tubes like Elijah some are temporary and some are permanent. He had 20 inches of his bowels removed,so now he has what you call short bowel syndrome. He is an amazingly strong boy both of the boys are. Elijah supposed to come to Children's and chill and get healthy and big and go home but hey I guess he wanted a battle wound scar like his brother. necsurvivorgtubeshortbowelsyndrometubefeedingstrongbabypreemiestronghttps://scontent.cdninstagram.com/t51.2885-15/e35/22636984_733840746821698_9093387523110993920_n.jpg2017-10-21
Kai Jeremiah FoundationKai Jeremiah Foundation2017-10-21It’s because of your support that we can bless other families and preemie warriors. We still have many more to be delivered 💙 Sponsor a Preemie Warrior Box today !! FightLikeKaipreemieawarenessnicumicropreemiepreemiestronghttps://scontent.cdninstagram.com/t51.2885-15/e35/22639398_1963145813932945_5464509671207337984_n.jpg2017-10-21
Parent Blogger | SarahParent Blogger | Sarah2017-10-21This is Elise after we brought her home. As you can see she is the cutest yawning baby ever! After seeing her with a tube for nearly 4 weeks it was so nice to see her full face. This was also before she started reacting to her milk and having bad eczema on her face! She had started to grow her eyebrows and eyelashes here too and she became more of a normal colour (she was bright red when she was born). https://scontent.cdninstagram.com/t51.2885-15/e35/22582313_147244736017448_7409239324891283456_n.jpg2017-10-21
Tonia FeinsteinTonia Feinstein2017-10-20I went to the ER thinking I had a sinus infection. My baby shower was that coming weekend and I needed this headache to stop. It was so bad. I was admitted quickly. Within an hour I lost my eye sight, contractions started and shortly after that I started throwing up. We were transported to a bigger hospital because the hospital I was at “wasn’t equipped for a preemie under 32 weeks”. Adriel was born 4 days later at 29 weeks. My kidneys were failing and my blood pressure was still dangerously high. The first time I went to the NICU the nurse wheeled me up close to the incubator and put my hand on his back. She told me not to rub or pat him. I could hear him crying, I couldn’t see him, I couldn’t comfort him. I could only cry with him.
I’m grateful that my sight slowly came back. I’m so grateful I can see his smile. This sweet boy and I are survivors. Nothing keeps us down.
OLPOLP2017-10-20New Nicu Graduate 💕New Nicu Graduate 💕New Nicu Graduate 💕New Nicu Graduate 💕New Nicu Graduate 💕New Nicu Graduate 💕New Nicu Graduate 💕
Thank you for sharing saymissmay
I was only 24 weeks when I had to have an emergency C-Section Aron Jr. was 14.1oz at birth. He was in the NICU for 309days undergoing 6 operations. He survived! He has now been home 10 days with a Trach, on a vent, G Tube and thriving!